Four years ago I got a prescription and almost no guidance, so I went looking for answers on TikTok and found a few hundred other people doing the same thing. That community grew into tens of thousands, then started a podcast to bring in the doctors, researchers and specialists who could actually answer our questions.
What I kept seeing was a system with real gaps in it, and people suffering inside those gaps. So I started filling them, on both sides. I support patients directly, and I help the organizations building for this community understand what it actually needs.
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